May 24, 2018
Listen to part two of the episode recorded live on location at HealtheVoices 2018. (Part one was posted last week, so check it out if you haven’t, already.) In this continuation of the multi-advocate panel discussion, our panelists talk about the most difficult aspect of their advocacy and how they deal with it. They also address misconceptions and ignorance about their diseases, such as the difference between AIDS and HIV or IBD and IBS, the fact that lupus is not contagious, and that men can have breast cancer. To close out the episode, each panelist shares his/her thoughts on what advocates for different conditions have in common.
[0:33] Each panelist shares what they find most difficult about their advocacy.
[8:32] AnnMarie speaks about breast cancer in men.
[10:48] AnnMarie shares her thoughts on joking about diseases.
[12:45] Marisa tells of the misconceptions the public has about lupus.
[16:05] Daniel speaks of his advocacy work in schools.
[18:30] Rasheed comments on the common confusion of IBD and IBS.
[20:30] Each panelist shares their observations on how advocates are the same, regardless of their conditions.